Showing posts with label Rachel. Show all posts
Showing posts with label Rachel. Show all posts

Thursday, November 21, 2013

Max and Ruby

A few weeks ago I entered a random contest on Facebook through Koba Entertainment and ended up winning four tickets to see Max and Ruby live along with a meet n' greet. I enter random things like that all the time, so I wasn't really expecting to win. When I did win, I had that moment of panic though: can I accept this? I emailed them back right away and asked about accessibility. You just never know. The PR person was great, said she'd notified the venue about our needs.

Kingsley is a huge Max and Ruby fan. Anyone who has seen the show seems to either love it or hate it. Simply put: children love it, parents hate it. I actually don't mind it that much. It makes Kingsley laugh. I kind of admire Ruby's patience with Max. And Grandma reminds me of Jeff's mom.


The kids were incredibly excited to go, all three of them. They were bouncing off the walls as we got ready to leave. Jeff had no desire to come had to work late, so it was just me and the three monkeys. We arrived early and picked up our tickets. As soon as we handed them over at the gate, the nice man there informed me that we didn't have a wheelchair seat and immediately went back to the ticket area to fix that. The Meet n Greet people had also not been prepared for a wheelchair backstage, but they figured out a solution quickly. Very nice people.

I tried very hard to prepare King for what he was about to meet. Little animated characters are one thing, ginormous costumed adults are something entirely different. I couldn't prep him enough. We went through the door and Kingsley just froze. Wide eyed, mute. He wouldn't high five, he wouldn't wave, he wouldn't do so much as a thumbs up in their direction. Cordelia also froze. Rachel acted as though Max and Ruby were her long lost BFF's. I could only stand by and laugh.


The show was very entertaining. The kids loved it, we had great seats. No, their parents weren't there. ;)

Friday, November 1, 2013

Halloween 2013

The last few years we have gone to a mall for Malloween, but this year they announced that they were no longer doing it. Looking at the weather report, I was panicking. The day before Halloween, a second mall announced that they would do Malloween. YEAAA!!! Whew! Thomas does not run well in the rain.


It worked out perfectly because it poured rain yesterday! Just downpoured all day long. We kept thinking it would let up, but it did not. We hit the mall and made our rounds there. It's a small mall, which was perfect.


Now, in the online world wheelchair costumes are not that uncommon, you can Google and see hundreds of them. In my real world, they don't exist. I have never seen one in real live other than the ones that I've made for Kinger, not before and not after. So, pretty good assumption that no one else around here has ever seen one either, especially based on the reactions he got at the mall. Nearly everyone we passed stopped to comment or stare. Kids came up to touch it, people parted to let him through, many of the store employees gave him extra candy... Kingsley was a little celebrity. It was really cute.


Unless you are Rachel and you are dressed as the BEST Tinkerbell there ever was and you're even wearing REAL MAKE UP and have your best Tinkerbell smile permanently plastered to your face... and no one notices because your brother is a rockstar. About halfway through the mall she asked if she and Cordelia could go ahead without us. She did not like being overlooked, the poor thing.


It was still pouring when we got home, so King had to stay at home while the girls and I hit the few houses in the neighbourhood. The handfuls of candy for braving the weather definitely cheered Rachel up.

Sunday, September 8, 2013

The Bog

In my search to find places I can take all three kids to hang out, my friend recommended the Sifton Bog. I've been there exactly once in my life and it was with a client way pre-kids. I had completely forgotten about this little gem!

It was a nice, sunny day today and we had nothing to do, so I dragged the kids into the van and off we went. Let me tell you, it was a hard sell. When I explained it, Rachel and Cordelia kept repeating: "But that's it?? Just walking? Nothing else? But what else do we do there? That's it?..." and on and on.

The Bog is basically just a boardwalk. It starts with a stretch of gravel, which was well groved and impossible for King to push himself along. Short trip, then it was wood planks.



It's nice, even planks, very easy for Kingsley to go down. The only trouble was that it dropped off on either side, as in - one wrong wheel and King would've face planted down a foot or so into the dirt and trees. I didn't worry about the girls, but Kingsley loves to watch his wheels light up when he goes very fast (his preferred speed) and that means he doesn't look where he's going. I just held his handle the whole walk and it was all fine.

The boardwalk leads to:


There were a bunch of tween-ish boys when we got there, which ended up being awesome. They had nets and were getting right in where they shouldn't have been (so glad I'm not their mother!) pulling out turtles, tadpoles, and frogs and attracting fish for my kids to watch.


All three were in heaven. We stayed on that dock for nearly an hour, just watching and exploring.


I didn't get any pictures of Kingsley because I either had a death grip on his wheelchair to make sure he didn't wheel himself over the edge or later crawl over the edge when he was lying on the dock, dangling over so he could play with the water.

I will admit, I am not a fan of all of natures creatures. They're all fine from a distance, so it took a lot of effort not to shudder and run away when these boys were running over with turtles and frogs to show Kingsley. At one point, two dragonflies landed on my shirt. I know, dragonflies are all cool and pretty and whatever, but seriously, it took all of my energy to force a smile and not scream as Rachel took this picture. She was thrilled. I was paralyzed with fear.

GET. OFF. ME.

All in all, a gold star trip. Thumbs up for the bog, we'll be back! (with bug repellent)

Thursday, November 15, 2012

Tinsey Talk

I was swimming with Kinger today and another mom asked how old he was, then commented on what a great vocabulary he has.

Kingsley. Vocabulary.

It completely blows my mind that Kingsley is doing so well with his speech. He speaks in sentences, has little conversations with me, tells jokes, listens to everything we say and has definitely caught up to his age. He did this in six months! Six months took him from 12 months to 30 months. Rockstar.

It's not entirely clear yet. He has some sound substitutions that I'm told are normal. The biggest one is subbing the sound T for all K sounds. He calls himself 'Tinsey', which I think is absolutely adorable. He will politely put his hand on his chest and say, "Me, Tinsey," if you introduce yourself, then point to me and say, "Mommy," as if these two things are all you would ever need to know.

The other thing that cracks me up is that he calls both Rachel and Cordelia, "Waychie," as if he couldn't be bothered to distinguish one sister from the other. I think it's his subtle way of snubbing Cordelia, who adores, smothers and harasses him every chance she gets. He knows she's Cordelia and will call her "Co-die" if asked outright who she is, but when talking TO her, she's Rachel.

One of my favourite thing he says right now is all the Super Why characters names. He *loves* Super Why. I've tried catching it on video because I just have to preserve how adorable he is yelling: "MOMMY! I'm Sue-pah Why-ee! To dah wescue! Wit' Won-dah Wed! And Pin-pess Pee! And Alpa-pid!"

So, there. Another time everyone gets to say 'I told you so!' about all the panicking I was doing over his lack of speech. It was slow, but it happened. The end. ;)

Saturday, September 8, 2012

Spectacle

"Hey, look!"
"Look at that kid..."
"Did you see him? Over there!"
"Mom! That boy is in a wheelchair!  LOOK! Mom! Mom! Over there! Mom, no wait Mom, look!"

Rachel and Cordelia just started school this week. Since we are moving at the end of this year, we were given permission to begin the girls at the school by our new house instead of the one that Rachel went to for JK and SK. As a result, we are at a big new school where no one knows us.... which lasted all of 1 minute.


It turns out, a two-year-old on wheels makes quite the spectacle. I kid you not, kids gather in crowds around us when we're waiting for the girls to go in the school or come out. The just come up and stare, in herds. It's one part rockstar status, one part a tad creepy. Most don't say a thing, just stare. Some like to touch his wheelchair, as if to confirm that it is not an illusion. Others try to talk to him. A handful ask questions, which make the other kids around stare harder with their eyes bulging, waiting to see if the brave kid is told off for asking questions or if I'll actually answer what they're all wondering: why is he in a wheelchair? 

I'm not really used to this. I suppose in the last year we have spent more of our time around adults, at stores, the library, the neighbourhood or in places where people just know Kingsley. At the school, there are just so many kids and so few adults to yank them away or hiss to be quiet. Kids are so blunt, so curious, so innocent.


The whole experience this week has made me very happy that we have a few years before Kingsley starts school there. He's so young now, he doesn't really notice the crowds, the stares and the questions. By the time he is four and in JK himself, the kids there will be used to him. They will just know him and his wheelchair will not be such a spectacle. I like that after one week in school, so many of the teachers and support staff are already on a first name basis with King and say hello when we come and go. I like that the school is only seven years old and is completely accessible, right down to the play equipment and the large, private, accessible bathroom.

The staring and the crowds don't bother the girls at all, nor me. Kingsley does stand up for himself when needed and has learned to say "Don't touch me, please!" (though it doesn't quite sound like that) when anyone touches his wheelchair. When asked, I tell the kids that Kingsley's legs don't work, that he was born this way, that he'll never walk and no, he can't stand on his own.


I also tell them that his name is Kingsley, he's two, and, yes, he is usually this grouchy in the morning.


Monday, March 19, 2012

It's Not That Bad

I think I have written and rewritten this post a half dozen times in the last few months. Things keep popping up in the media that make me feel like I have to speak up but the words aren't coming out right. There is far too much emotion attached to this one.

Life is random. The mantra we are fed as children gets repeated endlessly: life is not fair. Indeed it is not, nor is motherhood. There is no fairness in some women's ability to conceive children while others cannot. The sweet, angelic babies are not doled out to the single women with no support system, nor are the high needs colicky babies reserved for the most patient new moms with eager grandparents near by and a supportive partner. There is often no rhyme or reason to children who do not get to live long. Babies with disabilities or diseases are not given only to parents who are strong and who can handle it. We did not ask for it. We did not choose it.  No one hands us a list when we are deciding to have children so that we can run down the options and check off what we want. Blond hair - check! Blue eyes - check! Athletic build - check! Social personality - check!



I am not a supermom.

I didn't choose for Kingsley to have spina bifida. If given the choice, I would have politely declined that option, would not have checked that box. I wouldn't have checked the autism box either. Or the one with the third chromosome. Or any of the boxes that would lead me to being a 'special needs mom'.

I did choose to have a baby though. I chose him. I chose him and whatever he was coming with, I chose to take it. I don't mean that I made this choice when we 'found out', I made this choice the day I decided we were ready for number three.

It's not fair that I did everything right and this still happened. It's not fair that some women do everything wrong and it doesn't happen. It's not fair when us mothers are told things about our children that we did not expect, did not want to hear, and yes, even feared hearing above all else. It's not fair. But as a mother, we know that life is not fair. Things happen, but we now must accept that it's not just about us anymore. Deal with it.  No matter what we had hoped for, when that little baby is handed to us the other rule of childhood applies: you get what you get and you don't get upset. The checklist is gone. Your baby is here. You have one job - love them.


Because what is most unfair is the lie we tell ourselves about how accepting we are of differences. The lie we have deep down where we don't want to admit. The lie that comes out the day you are looked in the eye and told that life really is not fair. To see how unaccepting we are of people with disabilities we only need to look at the termination rates after a prenatal diagnosis or the reaction an adult has to learning that they now will be switching teams from able-bodied to disabled. Life is over. A life with a disability is not worth living, apparently. That decision is not fair.

We have such a double standard going. We pat our kids on the head and tell them that they should be nice to the little kid in the wheelchair. Don't stare at the little girl bouncing on her toes trying to fly. Don't point at the little boy who looks a little different. Be nice. Be friendly. Just don't you dare be my child.


I'm told often by the amazing community that I find myself in that living with a disability is not that bad. I have many friends who tell me that having a sibling with a disability is not that bad. Having a partner with a disability, a coworker with a disability, a neighbour with a disability, a friend with a disability... All not that bad. Most would say not bad at all. I can tell you in all honesty, having a child with a disability is not that bad. Not at all what I thought it would be. We have had a few rough patches, yes, and a few awkward moments, but that goes with having kids, no?


Six years ago today, my incredible daughter Rachel was born and I was forever changed in ways that there are just no words for. What I wanted for her in that moment was the same thing I still want for all of my children: to know in every second of their lives how deeply and madly they are loved, just as they are. It does not take an extraordinary woman to feel that love or an extraordinary child to receive it. And though I do happen to think that my three are quite extraordinary, Kingsley is not more or less worthy of such adjectives than the other two. He's just a kid. I'm just a mom. His disability isn't his whole life anymore than its mine. It may not be fair, but it certainly is not the end of the world.

If you ever find yourself in that position of discovering that your child is not going to be who you thought: relax. It's not going to be that bad. You are strong enough, you are amazing enough, you will do just fine. There's no need to panic. Remember that people with disabilities are people. They love, they laugh, they play, they communicate, they live. If you can get over yourself, you will do just fine.



Thursday, March 1, 2012

Living

I've been a total blog fail!  I've been blanking on anything to blog about lately, which I suppose is a good thing, right? We've just been doing boring life stuff, no excitement, no drama, no scares... just the way I like it!

And so for the second  time this year already, I'm going to do a pathetic little recap of all the big things in our life that we are currently consumed with...

1. Rachel's birthday. It's on March 19 and we are planning an epic Mermaid party to beat her Fairy party from last year. When I say 'epic' I do not mean that this will be the type of party that ends up on pinterest, because I am just not that put together, but it will be awesome for her... thanks to pinterest ;)

2. My birthday!! It's next week and to celebrate, I'm going away for the weekend. I've never done this before. It's funny because I'd be the first to give someone a funny look when they say they can't leave their non-breastfed kids, but even though King is no longer attached to me I just haven't ever gone away. So, I'm going. Two days without children or Jeff. I'm giddy with the thought of it!

3. Kingsley finally got his custom seat for his wheelchair! It's GORGEOUS and makes his ride look so cool. He loves it, I love it. I have no pictures. Total fail.

4. Skating! I took Kingsley and Cordelia with my friend Jen and it was a total success!! I'm just so proud of the two of them. We're going to start going a lot more regularly.

5. We are waiting to start speech therapy. He's at the top of the list and we just need to get ready for the call. In the meantime, I feel like he's communicating more and more. I'm so torn on this whole speech thing, it should probably have it's own post, but oh well. ;) I swing from KNOWING that Kingsley does things in his own time and worrying that things don't always go the way they're supposed to with him. Really, if I don't think about it, it doesn't bother me at all. I understand most of what he's trying to communicate to me and he responds as if he understands everything I'm saying to him. Speech will come.

6. Yoga. OK, this is just what my life is revolving around! My beloved Moksha Yoga finally opened another studio TWO MINUTES from my house. 'Love' doesn't begin to describe it, I pretty much want to camp out in their parking lot. I used to go to hot yoga all the time before kids, between pregnancies, and then life just got insane after Kingsley and I haven't been back on my own. I didn't know how much I needed this until I stepped into that hot room and felt like the weight of the last three years just lifted. I get up at 5:15 in the morning to go, that's how much I love it. The downside is that I tend to go to bed a lot earlier and obviously my blogging time has faded away. I'll work that out.

7. Crafts. We've created a crafting monster. Actually, I love it. The three kids sit at the kitchen table together and craft. Kingsley's mediums are crayon and sticker. He's getting quite talented. Mostly, I think he just loves being there with his sisters doing big kid things.

And, yep, that's about it. King's doing great, he's gotten over his colds, he flies around the house getting into trouble, and he's expanded his Love List to include Tyrone from the Backyardigans in addition to Elmo. He's having another brush with fame, but that I really will save for another day. ;)  And I'll start taking pictures, too!

Happy March!

Wednesday, December 7, 2011

How Much Can I Squeeze into One Post??

Well, life doesn't stand still just because you're waiting for an MRI to happen and tell you whether or not your little corner of the world is going to get hit with a bag of coal for Christmas. And while life has continued, we've been dipping our toes in Christmas fun!

For starters, we got our Christmas pictures back. In case you haven't noticed, I do like pictures of the kids complete with coordinating outfits and all that stuff they will one day hate me for. This year, I could only laugh. Their outfits are gorgeous, if I do say so myself. However. Kingsley was in the midst of a cold when photo day arrived. He woke up with dried snot all over his face (I know, you're wondering how my little rockstar could be anything but gorgeous, right? ;)) which left dry red patches everywhere. Cordelia was also grouchy and tired. Rachel was my usual princess. Add those three elements together and you get this:


Yeah, I don't want to spoil it for you if you are on my Christmas card list, but that's what you've got coming to you.


We put up the Christmas decorations, which sparked Rachel's annual roll playing of the birth of Jesus. She's been doing this the last three years. It has improved. The first year she wore an ice cream tub on her head as the halo and was usually naked except for a blanket around her waist. She's clearly taken a page from Linus's book with the blanket and the tie. ;) We all get to play parts in her story. Cordelia is lucky if she gets the roll of Angel (think: Gladys Herdman). Kingsley is usually a barnyard animal of some kind. I think the bunny there is favoured as Joseph. Nudie Baby (that creepy naked baby in Rachel's arms) is always Jesus. My favourite part is when she waddles around with Nudie Baby under her dress looking for a place to stay.

I was nervous about how the tree would go with Kingsley on wheels this year. So far, he has nothing but love. He wheels right up to it and stares in awe. Loves to delicately touch the ornaments and basically try to live inside the tree. I know the feeling, I used to love lying under the tree when I was a kid. It's so pretty. Even when it looks like Christmas threw up on it.


We went to a family Christmas party and met Santa. Like last year, Kingsley and Cordelia wanted no part of it. Also like last year, Rachel snuggled in and would've happily sat there chatting with him all day if it were allowed. Kingsley amazed everyone with his wheeling skills. He zipped in and out of everywhere! I love my little mobile man.



He looks like such a big kid here, eating pizza with his sisters like it's no big thing. 

He was enthralled with markers. Has no interest at home, but here they were the Best Thing Ever. Isn't that always the way?

I also had the very cool opportunity to participate in an online cookie exchange via a guest blog! I'm all kinds of famous now. ;)  Have a look: http://maijasmommymoments.com/cookie-exchange-sugar-cookies-fit-for-a-king/ Maija and I have known each other for about half our lives (*choke*), since way back in the day when she dreamed of being a writer and I dreamed of stealing her answers on Sir Gawain and the Green Knight. She still is an amazing writer, as you'll see if you snoop around her blog a bit. 

Speaking of famous, Kingsley and Cordelia have once again decided that showing off on websites and on letterheads is a bit too run-of-the-mill for them. So, now they are in a commercial spot for a fundraiser for our centre. 


I think that about sums up the excitement for right now. In business news, Kingsley's having some wonky urological things happening again, but his head banging stopped as soon as his pesky molar popped through.  We even had a few days where he was babbling up a storm and all those lost consonants were back. Constantly keeping us on our toes, this one. Four more days, then we'll see. 

Sunday, May 8, 2011

The People Who Made Me

My Mom and Me ~ March 9, 1978

 Rachel Renee ~ March 19, 2006

Cordelia Capri ~ May 20, 2008

Kingsley Kieran ~ January 15, 2010

These four people have made me the mother that I am today and for that, I am so grateful. 
I simply love being a mother.

Happy Mother's Day!

Tuesday, April 19, 2011

Planning

I am a planner. An organizer. A Type A.

Some people find my endless checklists and compulsive need to plan every detail, every minute, and be prepared for every surprise slightly annoying *ahemJeff*

I can be impulsive and do things on a whim, I'm not that uptight. I just work best when I have a plan and know what is going to be happening.

Most of my life has gone according to plan in one way or another. The school, the career, the husband, the children, the house, the car (Jeff's, not mine. I did not want a van). All things I saw coming.

That's where the planning unravels though, isn't it?  Children, obviously, do not fit into this lifestyle of planning and organizing very well. You can plan to leave your house at 8:45am and even when you get up at 6:30am and have everything all prepared to make the mass exodus happen on time, it inevitably will not happen. Ever. You can plan a fabulous family day and there will still be whining and tears. You can plan on having a nap, but we all know that's just a wild pipe dream.

Spina bifida most definitely does not fit into my well planned lifestyle. More specifically, shunts and syrinx's do not fit my lifestyle. I feel like life has been on hold for nine months and now it is April and I want to be making summer plans. I want to book a cottage for a week. I want to road trip with the kids to Toronto and Niagara Falls (don't you dare mention last year - this year will be much better!!!).

The trouble is, Billy the Shunt makes me hesitant to be anywhere I can't reach a neurosurgeon in under an hour. And the nameless syrinx... Well, Kingsley is doing fantastic right now. It's been over two months since his detethering and we're seeing nothing but improvements. Every day he is gaining gaining gaining. I can relax, right? I can count on this staying stable. I can plan.

EXCEPT!

June is the follow up month where Kingsley will get another MRI and see a whole bunch of specialists. In my head right now I have about 6 weeks blocked off from mid-June to the end of July where I have Kingsley scheduled for an MRI, panic, surgery, and recovery. Isn't that terrible? What's that saying? Plan for the worst, hope for the best? Yeah, that's my new planning strategy these days.

So, sometime in May or June we're going to plan a last-minute vacation to Toronto and/or Niagara Falls and I'm going to try to find a cottage for August. If we get the glorious news that the syrinx has shrunk or does not cause any trouble between now and then, well then July is going to be a free-for-all with day trips and laying around basking in the nothingness of our days.

In the meantime, we are planning our garden.


We are planning for spring to actually stick around and/or turn into summer.

That weird white stuff on my garden is SNOW!! For real snow. I took this picture yesterday. As I cried. 

We are planning for Easter!


And we are planning for all the fabulous things we'll do next week when my niece Kamille comes to visit (although planning with them is like trying to pin jello to the wall - you know it's true K4!!!).

Oh, also planning for the ever so exciting unveiling of Kingsley's new wheels. I'm not holding out on you, it hasn't happened yet. I'm anticipating either tomorrow or Thursday. We'll see!

Thursday, March 17, 2011

ShamRockStar

I'm not going to lie, I've been really frustrated lately.  Between the surgeries, recovery, the flu and then his first UTI (NOT the shunt, phew!), it seems King can not catch a break. Whenever I get excited about finally getting ready to move forward, something stalls him all over again. I remind myself that this is a journey. It's not a race, there is no deadline or finish line. Kingsley will get where he's going when he gets there.

Then I'll panic and think he'll never do this or never do that and start wondering when the last time I saw his legs move and why is he gagging so much, OMG it's the Chiari, he's going to have to have another decompression and a shunt revision at the same time because I'm sure he hasn't smiled in the last hour and now he's arching backwards and he has no motivation to move how am I ever going to teach him to do anything and on and on and on.... You know how it is.


Someone please come shake me when I start thinking like this, okay? Remind me that my son is a capital R ROCKSTAR.

Now that he's recovered from surgery and the flu and he's gone through his course of antibiotics, my baby boy has returned and I can finally breathe again. His legs are moving as much as they were post-surgery, which isn't a ton, but it's not a regression so we're fine. He's not really arching back that much, unless he's trying to see something behind him. And now that he's not sick, he's not gagging or throwing up anymore (shocking, I know - who would've guessed the two were related? ;) ).

Oh, and naturally he is suddenly doing some awesome things.

Like talking.


He's got a handful of words and a few signs he does now. I love it. He's finally starting to let us into his head. He's also starting to sing, which is mostly just him belting out AAAAYAAAYAYAAYAAAAA or BAABABAAABABAAAABABABAAA.  It makes me laugh. He'll have a whole babbling conversation with you, back and forth, and now he's starting to imitate sounds. Love it. I can't get enough of his sweet little voice. OK, maybe at 3am it's not the sweetest sound, but during daylight hours, I love it.

And dancing. (the action begins at 0:30 - I couldn't figure out how to edit it)



And the most ground breaking thing to date: picking up his cup and drinking all by himself.



I almost fell off my chair at dinner. I fed him a jar of that nasty food he likes. He yelled for more. I fed him another one. He barked at me to let me know he was thirsty.  I held his cup for him, did the usual hand-over-hand to get him to hold his cup (which he immediately let go of the second I eased up on the pressure). As my arm got more and more tired holding his cup and my dinner went from hot to lukewarm, I mentally started to list the goals I was going to start attacking:
1. hold his own cup;
2. feed himself;
3. eat finger foods;
4. eat a bigger variety of foods....
Finally I dropped the cup on his tray and started to eat as fast as I could before he whined for more when what do I hear? GLUG GLUG GLUG GLUG. I turned to see him holding his cup with two hands drinking like it was something he's done every day. I kid you not, he has never even picked up his cup, Ev.Er. nevermind put it to his lips. In fact, I can count on one hand the number of things he's ever put to his lips other than his own hands. So, of course I grabbed my phone and my camera so I could take video and pictures at the same time. He kept looking at me and smirking.  The little stinker. I wonder how long he's been thinking about that one.

He then picked up one of the dried chick peas that he has on his tray to play with during dinner and kept teasing me by bringing his hand toward his mouth like he was going to eat it! WHAT?? He didn't, which is good, but I'm going to have to trade them out for something he could actually eat and start watching the little choke-ables. All in time, I tell ya.

OK, so talking and dancing and feeding yourself are not huge exciting things for most babies. Worthy of a video, sure, but not tears of joy and celebration perhaps. My Kinger is not most babies though, so holding his own cup qualifies him for a big party and a week's vacation down south.


The other big exciting things around here revolve around the world melting.


Spring is COMING!! You can actually see grass.


But before that happens, my big baby girl is turning five. FIVE. In two days, I will have a five year old. How wild.

Saturday, October 31, 2009

Checking In

Things are okay. I'm feeling better all around. I think the best thing for me, baby wise, has been finding blogs of other little kids born with SB. I usually only read up until they're a couple months old, but every single one is the same: panic through pregnancy, then the baby is born and they're just so overwhelmed by the BABY, not the SB, same as it is with any birth. Other than the surgeries. It just keeps reminding me that he'll just be our baby boy first. Everything else, we'll manage. I'm getting antsy to hold him and smell him and just do all of that newborn stuff. He moves like crazy now, all the time.


I've decided to start my mat leave way early this time. My last day will be December 18. I won't have any vacation left after all the days I take off for appointments (nearly 1/week right now), but if/when I come back, I'll have some banked from my year off to get me through the holidays and then I'll start in January either way. I can't wait to be done. Work is such a pain in the ass. And seriously, I have SO MANY appointments! I see my OB every 3 weeks, the neuro every month, now I have to add in Social Work and massage (bc I friggin ache!), then random stuff like glucose testing (routine test for gestational diabetes), an MRI (Nov 26!), my Rh shot, ultrasounds, etc. just means so much time off.
Anyway, I've been busy! The girls are still so delicious though. Cordelia still doesn't talk much. She says a few words, will say things for a day and then never again. Her receptive language is amazing though, little stinker. I think she just likes grunting and playing games with us. Rachel is so so so pysched to be a fairy tonight. She has been to 2 Halloween parties so far and the look on her face when she gets dressed is priceless. I swear, she thinks she really is a fairy. I could just eat her up. The three of us got our HINI shots the other day so we are all set for germs, hopefully. Jeff will have to get his later so that the baby doesn't get sick.
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